Thursday, December 6, 2007

Sheeeeesssss's Baaaaaccckkkkk!!

A week of calmness and staying at home has really made a difference in taming our wild girl! She has really settled down, and is no longer constantly moving. (I'm not kidding about the constant motion. We would count and I think the longest she ever sat still was 4 seconds!) The past couple of nights Ya Ya was still waking up every 3 hours (& staying up for 4) but her complete despair was lessened to soft cries with long breaks in between. I was finally able to graduate to our king size bed with her, although I was still not allowed to talk to her or touch her, yet she would sit at my feet and fall asleep facing away from me. As soon as she fell asleep I'd pull her up to me and snuggle up to her, hoping she wouldn't wake up and hit me!!!
Anyways last night as I carried her upstairs (with her hitting me because she knew it was bedtime) I set her on the bed while I climbed in waiting for the crying to begin, and guess what??? She laid down right next to me, plopped her thumb in her mouth and fell asleep all night long!! I was frozen next to her, afraid to move. I wanted to shout out my happiness!! I got to snuggle this precious girl and she wasn't resisting!! (well duh, she was asleep.) Yes, this is great stuff!!
Xiao Ya saw the Dr. yesterday and had her pint of blood drawn, and tomorrow I get to scoop her poop out of her diaper and bring in samples. This should be loads of fun, but necessary of course. Ya Ya will be seeing a neurologist to figure out all her cafe-au-lait spots. More than five could be a sign of neurofibromatosis, and between her reg. Dr. and I we counted at least five, but some are pretty faint so it will be nice to have someone who knows what they're doing look at her. She doesn't appear to have any other things going on so we'll see. Neurofibromatosis was something the geneticist ruled out in Jie Ling, so I knew this could be a possibility with Xiao Ya and her macrodactyly.

Today we went to Nordstrom and Xiao Ya got her first pair of shoes!! Nordstrom allows you to buy different sized shoes, so we finally found a pair to accommodate her foot!! I was so excited for Ya Ya! I'm pretty happy that she has had surgery, and maybe removing one of her other toes, she'll be able to keep her foot and still wear shoes comfortably.












Look at this amazing girl!! She was so proud of her castle!!

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