Wednesday, July 9, 2008

You should see the other guy.



Nick's grid placement went well. He had 146 electrodes placed on the left side of his brain, and started having seizures before even leaving the ICU. He was finishing up a huge seizure right before his grandpa and I arrived which was very upsetting to everyone. Luckily after some heavy drugs things settled down and he then proceed to have a seizure every half hour (not big ones) which kindof freaked his drs out. He could have these grids in for two weeks, but decided to have all his seizures in the first 4 hours of being hooked up. As is the case in all video eegs, you press the button when the seizure starts which alerts the whole floor with a siren, flips the lights on, and everyone comes running. Well doing this every half hour it became pretty comical. By the time they came in his seizures had stopped. His typical seizures are brief, but very frequent. I think he had twenty yesterday. I told them that I could just reset the monitors, but they wouldn't allow it. Anyways, it's now the end of day two and he's back on all of his meds. He felt pretty crappy today and woke up this am with his eye swollen shut. He's getting tired of hearing how all this is normal for brain surgery.

Tomorrow am his surgeon and neurologist and some other guy will come in and start mapping out his brain by stimulating different parts of his brain with small amounts of current. This data will tell them if they can proceed with the resection. This whole surgery boils down to what they find out tomorrow morning. I am prepared to be disappointed. My heart will break for Nick if he's gone through all of this for nothing. His doctors were talking to us today about implanting a brain stimulator in Nick, but he would have to heal from this surgery first for three months, and even then the stimulator is not FDA approved, so Nick would be part of a clinical trial. I can't imagine him having another surgery in three months, but will support whatever he decides.

The picture of Nick looks a lot worse than he actually is. His head looks so big because they packed the wires on top of his head and then wrapped it all up. His eye really is swollen shut, but this is normal.

Since Nick had seizures like crazy (way to go Nick) in 4 hours, and they got the data they needed, he will have his surgery moved up 5 days! This is so awesome!

I am exhausted and feel like this post is not making sense.

more later...

No comments: